EDS is a not so rare but rather a difficult to diagnose multisystem connective tissue disorder that is often misdiagnosed, misunderstood and certainly under-serviced.
Please support our “Thunderclap Campaign” during the month of May 2016, to raise awareness & fund research in Canada for EDS & related conditions by sharing information & donating
“People living with Ehlers-Danlos Syndrome and other rare diseases face enough challenges on a daily basis that finding the right care and support in Ontario shouldn’t be one of them. The new initiatives our government is pursuing will help people living with Ehlers-Danlos Syndrome and other rare diseases access the supports they need so they can receive the highest quality of care close to home.”
– Dr. Eric Hoskins, Minister of Health and Long-Term Care
“The establishment of the joint adult and pediatric EDS clinic is a big step forward in providing multi-disciplinary care and treatment for EDS patients in Ontario. This important model may also serve the needs of patients in the future who have similarly rare and complicated disorders. I am delighted that Minister Hoskins has supported the recommendations of the EDS Expert Panel.”
– Dr. James T. Rutka, Co-Chair, Ehlers-Danlos Syndrome Expert Panel, ILC Medical Adviser
Zebra Elephant image used with permission from Rainbow Zebra Graphics